It is Sunday night and we are still in the hospital. Hannah came in for a routine procedure and while under observation started showing signs of a fever. Her fever had broke but by 11:30pm she had developed another fever. Things went from bad to worse.
She struggled all through the night and into the next early afternoon. She was going into respiratory failure. They transferred her down to the PICU in case they needed to put a breathing tube in. Our Hannah is a trooper and did well enough that she ended up not needing one. One might ask what would cause this? There are several factors ......
It could be because she is going into heart failure more quickly due to the aortapulmonary window in her heart or .....
she had a rough day with the heart cath (goes up through the groin to the heart and is invasive), spinal tap, urine cath for samples, they poked her 10 times to try and get an Ivy in and take blood for tests (none of which were successful and 8 of which ended up in blown veins), she had a breathing tube down her throat while she was sedated so I imagine her throat would be sore, her nose was clogged up form all the crying, she developed a fever..... she started breathing really hard and was only getting maybe 5-10 minutes of rest in between being distressed.... so conclusion she became exhausted. Hannah already has to work extra hard to breath and to do everything else and then when you throw all of the other stuff into the picture of course it is only natural for her body to respond by going into Respiratory Failure.
She came up from the PICU today and is doing way better. They added 2 new meds to slow down her body from going into heart failure. The cardiologists and surgeons are meeting tomorrow rather than Friday to discuss Hannah's case. This leads me to believe that they are wanting to do something soon so this does not happen again. If she were to get sick it could be way worse than it was this weekend. We will know more of what they are planning for Hannah tomorrow.
She has slept all day and is improving.... she came off her antibiotics around 10pm tonight which means she does not have any viral or bacterial infections. I will keep everyone up to date as I learn things.
So for now Hannah an I will be at Children's Mercy for the next 3-4 days unless they have a different plan for Hannah and we will see what that is in the morning. Her nurse tonight is amazing and we hope we see her back tomorrow. You can tell she really cares for her patients and loves her job and for that I am grateful :)
Love,
Sam
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Little Hannah is a trooper, no one wants to get poked at over and over, day after day. I hope Hannah is feeling better and can get some rest after her eventful few days.
I hope you and Rick and Caleb are also doing ok, I know it's stressful...I cannot even imagine how you handle it but you are doing great and I know Hannah appreciates all the love she gets from you all. She is very lucky! We love you guys, Give Hannah and Caleb hugs for us!
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