No one said this would be easy

Hannah is doing well. She should be moving to the floor tomorrow some time if she behaves through out the night. They will then watch her for a few days in recovery and then we should be set to go home :)

Last night Hannah had some twitching(thought to be a mild seizure) in her feet and fingers for about a minute. So far this was a one time thing. They wanted a CT of her brain just to make sure everything was okay. Around 1:30 today the PICU doctor came to deliver the news. The size of Hannah's brain is only about 80% of what a 7 week olds brain should look like. What does this mean? We really don't know at this moment. For now all it means is that Hannah is at a greater risk for developmental delays. Neurology is going to do an MRI before we leave. All this will do is tell us the structure of her brain, it does not and can not tell us what she will be able to accomplish in life.

What I know as her mother is that Hannah is a fighter and a survivor! She has been fighting for her little life from day 1! She may indeed be behind developmentally but Hannah has not had the chance to do all that a healthy baby gets to do. She has been in a hospital bed for more than half her life and is on at least 4 different medications to help her thrive. I know once given the chance she will catch up. This news is not easy to hear, as a parent you have dreams and hopes for your child and it was as if those dreams and hopes were ripped away from me in a moments time. I will not limit Hannah in any way! She has to have someone push her to reach the many milestones in life and to hope for her. I will do that no matter what. If Hannah does happen to have some developmental delays oh well! Hannah is the same to me today as she was when I first held her in my arms and that is she is perfect and I love her. She is who Heavenly Father intended her to be! She is loved by Ricky, myself, Caleb, and many others. That is whats important in life...love.

Ricky and I will continue to fight with and for this beautiful daughter of God that we have been blessed with. We will take this one day at time, that is all I know how to do. We will learn many new things together and this will only make us stronger as a family. We will not allow it to be any other way. Hannah has so many hurdles in life and this is just another one added in the mix of it all and we will overcome this obstacle as well as the others.

Again, we do not know what this means. This is going to be a wait and see process. We will take it one step at a time and we will learn as we go and do the things needed to help our little miss! Hannah has such a sweet spirit and she was given to Rick and I for a reason. We will care for her and love her unconditionally. She will teach us many things in our life. It has not been easy and it will not be easy but it has been and will be worth every second of every day!

Love,
Sam